We are coming up on our travel time and busy getting things ready. Lots of things to do and so little time... Next week I travel to Baltimore with several of the children 3 of the days... for medical check ups or post op for Luke. We saw Dr. Standard on 5/8 for Luke and Mya . He is still impressed with how well Luke is doing... a truly amazing child. Only one issue was really shared and that was how Luke's leg looks like it bows out... This was something expected and will be taken care of when he hits puberty . He is being fitted for another brace to wear at nite but first will wear a removable stretching cast only at nite on that leg for about 2 months. Mya we discussed how to maximize her ability to walk.... She prefers to hop instead of use her l leg- especially when she wants to go fast- which is all the time. She can hop very fast on one leg with great balance too. Since we saw her peds. neurologist 3 weeks ago she has used Luke's reverse walker and that really helps. Dr. Standard thought it was a great idea. We talked about a muscle transfer of her hamstrings on the l leg to her knee but right now she does not have much to transfer. So I was taught some pt to do with her to strengthen her hamstrings and to stretch her knee. She is about only 20 degrees off from a 180 degree ( straight) leg which is the best for her to walk. We should be able to gain that with the pt. She also is being fitted next week with this removable stretching cast to wear only at nite.... Both are so funny about it. At my mom's funeral she was telling people she was getting her leg (chopped off) amputated.... I actually had some relatives who believed her.... She does not mind her walker . She will also try a new AFO that will go over her knee to stabilize it. I am not sure she will like it but maybe if she can walk with it better.... She is such an active child. It will be hard to get her to wear shoes . She loves being bearfooted... So we will see. She certainly has gumption and heart. Then on Tuesday I take Lily and Anna for their eye appts. in Baltimore. Our peds. opthamologist moved her practice and instead of a 45 min. drive we will go 2 hrs.... but we like her so it is worth the travel. Ben has a check up with our pediatrician on Wed. but that is local. I am trying to get as much of this type of things done..... Then it is on to Ukraine....
We are getting excited. We just spoke with the director of the kid's orphanage. She has been to our house 2 times this past year with a host program..... very positive and emotional visits. We are looking forward to seeing her again in Ukraine. Please pray for us as we finish the final preparations.... It seems like I would never be able to say that.... and here it is now 20 days away.....
So exciting! Will be checking in regularly!
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