Saturday, January 9, 2010

Gracie and Andrew update


We have been home 2 weeks now... Both the kids are doing very well. Gracie was at the doctors on Friday and she has gained almost 2 lbs with us. She is relatively healthy and the only 2 issues for now are to have her eyes checked because of the exotropia ( eyes going out occassionally) and to get her hearing tested.. just to make sure that she is not talking because of an issue with her hearing. She seems to not have a problem because she does respond and do the things we ask her but it will be good to make sure. She is in the minus 3 percent but we are not at all worried because so many of our children are just tiny in stature but huge in heart and effort.... she got some shots like Andrew and we will do some blood work. We got an air hockey board from Sams Club on Friday and she loves it... as you can tell. Andrew is eating more as I offer it... a typical breakfast for him is an egg, a piece of bread, a banana with some yougart and milk and rice or oatmeal cereal.. all of it is ground up and eaten in 2 bottles. Lunch is 2 pieces of meat, a baked potatoe, a slice of bread, vegetables and fruit with some spoons of cottage cheese with milk fed in 2 bottles. Dinner is ground up what we eat and then usually a sweeter bottle of a banana with animal crackers, applesauce and milk... so he is eating lots of calories ..just all thru the bottles... we will be at the cleft clinic team all day on Monday at Johns Hopkins... when I called last week they told me to bring him right in.... praise God for knowing our doctors so well. He will see many specialists on that team and we should find out some ways to help our little guy even more. He is doing well... we are weaning him off of the seizure medicine per our pediatrician and neurologist suggestion and he is doing well with that.
It amazes me how well the family is doing with the new ones... often Andrew is being held or played with by many siblings and I hear "I just love him or I am so glad you got him mommy." All the kids come around Gracie to help her or include her and she is loving the attention... Mya got a pair of princess slippers for her birthday.. and Gracie loves them... so does Ava.. so I will have to find some more for my little girls. Funny how they pick up on high heel shoes.. even Mya clops in them with her fixator on...









2 comments:

Jodi said...

I have been wondering how they are doing! Thanks for posting :) It's too cute how Andrew crawls under things. They are both doing so well, and man, sounds like Andrew is eating alot! So good to see him looking healthy.

Jodi

Kelly said...

They sound like they are doing great!! I need more details on the bottles! Do you cut a big hole? Do you grind it all up in a baby food grinder?

They are so cute!