He would sit in his chair for 45 minutes to an hour very content. Tonite was the first time he sat beside us at the table while we ate dinner. He did all of his exercising , sensory stuff in such a great mood.... and the best part we have been weaning him totally off of all the mood meds. I think seeing him like this today has been so encouraging. He has not been content with any of his favorites like music, being outside for any length of time in a long while. This past year was very hard but , we are beginning to see the light at the end of this tunnel....at least for now. Having special needs children is like this...You go thru periods of fast progress and then a plateau for awhile. I am excited to see the changes in the next few months....maybe potty training :)
Tuesday, January 22, 2013
I can't tell you how happy this little guys smile in his new wheels makes me
He would sit in his chair for 45 minutes to an hour very content. Tonite was the first time he sat beside us at the table while we ate dinner. He did all of his exercising , sensory stuff in such a great mood.... and the best part we have been weaning him totally off of all the mood meds. I think seeing him like this today has been so encouraging. He has not been content with any of his favorites like music, being outside for any length of time in a long while. This past year was very hard but , we are beginning to see the light at the end of this tunnel....at least for now. Having special needs children is like this...You go thru periods of fast progress and then a plateau for awhile. I am excited to see the changes in the next few months....maybe potty training :)
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4 comments:
Love seeing the smiles. You are so right about our kiddos. They can plateau for awhile and then suddenly we'll see progress. Right now, it is our Jon with his speech. For years we had very few words. I don't know when it started, but I suddenly realized he now has more than 100 words that he uses in a meaningful way. Unfortunately, sometimes we also see regression after the plateau. That is what we are seeing with our daughter. That is expected when kids with muscular dystrophy get to their teens, but still hard to see.
Glad Andrew is happy! :)
Wonderful news. :) He is precious and SO ARE YOU! :)
Wonderful! Love that first pic! =)
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